What My Health Team Needs to Know: Family Caregiver Voice in the Time of COVID-19
Since 2018, the Nexus Summit has been planned in part by a panel of “super” patients, who have substantial experience with the United States health care system. Through their long-term and varied experiences as recipients of care, they share keen observations about what works and doesn’t work, how they have been engaged and respected (or haven’t been), whether their care is coordinated, and if their health professionals are truly a team - one including them. Patients and advocates Ted Meyer and Shelley Cohen Konrad help to curate the conversation and bring to light themes and trends from their observations as integral planners of the Nexus Summit.
Join the 2020 Patient, Family, and Community Panel as they share and the experience of patients and caregivers in the time of COVID-19. New this year, the panel focuses on the family caregiver experience, which is complex, diverse and often unrecognized as an all-encompassing role in health care. This panel will discuss unique challenges of caregiving both prior to COVID-19 and those caused by the pandemic, including supply chain disruption, changes in identity, loss of closeness in the healthcare delivery system, and loss of safety nets in caring for ourselves and our loved ones. Explored as well is the role of race and its implications for providing quality health care to families of color. Incorporating live interviews, video, and artwork, the Patient, Family, and Caregiver panel will center the Nexus Summit 2020 on the experiences, stories, and needs of patients, families, and caregivers.
The patient, family, and community experience will continue to center the conversation at the Nexus Summit through the learning track, “IPE Through the Eyes of Individuals (Patients, Clients, People), Families and Caregivers, and Communities.” Watch for seminars and lightning talks representing IPE focused on health and patient outcomes, striving to move beyond patient-centered care to engage patients in their care as true members of the team.